Dubai PR Network, Online Press Release from Dubai and Middle East
Government Sector(Government, Legal & Humanity)
Filter PR by
The UAE Rare Disease Society Announces a new Board of Directors
The UAE Rare Disease Society Announces a new Board of Directors
● The new Board of Directors will ensure the Society continues to
 form new partnerships to raise awareness and contribute to providing social, mental, and psychological support to patients and their families
 support and fund scientific research for developing new diagnostic tests and treatments of rare diseases
 collaborate with civil institutions and international NGOs in the UAE and abroad
Dubai - 27, September 2021: During the general assembly meeting - in the presence of the Ministry of Community Development and in accordance with the Public Associations and Institutions of Public Benefit law - the United Arab Emirates Rare Disease Society elected and welcomed a new Board of Directors.
Managing Director of Dubai Science Park and Chairing Member of the Pharmaceuticals and Medical Equipment Taskforce of the Dubai Industrial Strategy 2030, Marwan Abdulaziz Janahi was elected as Chairman of the Board. Other elected members include Nafsiya Mohammed Tawfiq as the Vice Chairman, Salama Al Nuaimi as the Secretary General, Awatef Abdul Baqi al Jasmi as Treasurer, and Dr. Fatima Abdullah Bastaki, Dr. Amal Muhammad Al Tunaiji and Maha Khalifa Al Kaabi as members of the Board.  Zakia Khalifa Al Riyami and Mishaal Abdul Wahab Al Hammadi were elected as reserve members.
The Ministry of Community Development formed the UAE Rare Disease Society under Federal Decree Law No. (7) of 2018 as a Civil Organization, headquartered in Dubai. The Society aims to raise awareness and educate the community about those suffering from rare diseases. It also seeks to provide mental, social and moral support to patients and their families. The UAE Rare Disease Society partners with local and international civil institutions and NGOs to support and fund scientific research for developing new diagnostic tests and treatment for rare diseases. 
Marwan Abdulaziz Janahi, Elected Chairman of the Board said, “The UAE is heavily invested in building a world-class healthcare infrastructure that focuses on elevating science, healthcare, as well as research and development sectors, reflecting on our strong leadership and the government’s wider vision. The UAE Rare Disease Society aims to extend a hand to patients and their families that live and cope with rare conditions, to help them through their social and mental struggles – and ultimately form a more inclusive society at large.”
He added, “The UAE Rare Disease Society collaborates and partners with national and global healthcare organizations to foster knowledge exchange and contribute to developing healthcare initiatives and innovative treatments for patients affected by rare diseases.”
Nafisa Tawfiq, Vice Chairman of the Board said, “The UAE Rare Disease Society hosted Dubai’s first international Genetic Metabolic Conference a few years ago and we look forward to expanding our initiatives to ensure a better future for patients in Dubai, the UAE, and beyond. Together with our partners, such as the Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences, we aim to bring healthcare innovations to life and provide better quality of care for patients and their families.” Tawfiq thanked all former members of the Board for their commitment and support over the years to the Rare Disease Society. 
According to the World Health Organization, a disease is considered rare if it affects less than 5 in 10,000 people. There are between 5,000 to 8,000 rare diseases that exist in the world today, most of which have a genetic basis. It is estimated that more than 300 million people worldwide are currently living with a rare disease that is challenging to diagnose and treat. 

Posted by : Dubai PR Network Editorial Team
Viewed 6137 times
PR Category : Government, Legal & Humanity
Posted on : Monday, September 27, 2021  9:30:00 AM UAE local time (GMT+4)
Replication or redistribution in whole or in part is expressly prohibited without the prior written consent of
Previous Story : Jafza and Dubai Courts Launch the 1st Virtual Court in the M...
Next Story : Dubai Municipality Wins 10 Categories of International Stevi...
Email this article Print this article

Share this article with your friends and followers
Back to Section Home

Related Stories

Most Viewed Press Release posted in the last 7 days
Korean Food Gains Global Acceptance with 4% Market Share and US$10 BN Revenue in Target Ma... [24793-Views]
Al Ansari Exchange sees surge in non-resident transactions in first 10 days of Expo 2020 [23493-Views]
For Every Story, For Every Me [8479-Views]
The Tonda PF Collection- A Purist's Delight for Those in the Know [7950-Views]
Big Crown ProPilot Big Date Bronze- Flair Time [7380-Views]
Global Music Stars Relaunch Pandora ME for the Creative Next Generation [7093-Views]
TURKEY'S Rumeysa Gelgi is warded GUINNESS WORLD RECORDS™ Title for Tallest Woman Living wi... [6613-Views]
LG Releases Preliminary Earnings For Third-Quarter 2021 [6166-Views]
Pandora Introduces New Limited-Edition Charm in Support of Unicef [5309-Views]
Wash Day Essentials: The Only Collection You'll Need for Perfect Curls [4834-Views]
Malabar Gold & Diamonds Launches ‘Bella Collection' – Dazzling 22k Gold Jewellery Curated... [3846-Views]
TCS Saudi Arabia Wins World Leadership Congress Award [3592-Views]
OMEGA Reveals the Secret of James Bond's Watch [3579-Views]
Arab Fashion Week Celebrates its Return to Physical Shows at Dubai Design District [3436-Views]
Aster Hospitals UAE Launches Oncology Centre in Dubai [3284-Views]
Jaguar Land Rover Trials World-first Digital Supply Chain for Leather Using Blockchain Tec... [3136-Views]
Germany Lifts Travel Restrictions for GCC Travellers [3100-Views]
Hitachi Energy goes Live [3001-Views]
Leading Cloud Managed Service Provider G7 CR Technologies to Launch STAB Program for ISVs ... [2981-Views]
Hyundai Motor Signals Carbon Neutral Commitment through New ‘Expecting Generation One' Cam... [2972-Views]
Etihad Raises US$1.2 Billion in First Sustainability-Linked ESG Loan in Global Aviation [2964-Views]
UAE to Form Women's World Tour Team Exciting Project Set to Launch for 2022 [2903-Views]
Boom of Attendance at WHITE Milano. Over 13,000 visitors, 85% of whom were buyers. [2866-Views]
Kristina Fidelskaya — Spring / Summer 2022 'Peace' Collection [2849-Views]
Oblique Creations Showcases the A/W 21 Collection in Dubai [2849-Views]
RSS Facebook Twitter LinkedDin on Instagram
Top Sections
Top Stories